There has been a lot going on in the Narruhn world lately. Two weeks after Henry was born, Nick started to have chest pain that kept getting more intense every time he would run. He didn't say anything about it the first time it happened, but certainly did the second or third time it happened, when he landed himself in the emergency room. Nick has a medical condition known as Wolff Parkinson White Syndrome. We've known about since 2008, but it has caused no issues until recently. This condition means Nick has an extra electrical pathway in his heart. The pathway laid dormant and the energy was not going through it. Suddenly the energy started to go through that pathway causing tachycardia (rapid heartbeat....200+ per minute to be exact). Luckily this condition is fixable, and the surgery is not that complicated....in most cases. However, Nick's accessory pathway is close to his AV node (what makes the heart beat) and if they go in and use radio frequency to burn it off (called an ablation) they could damage the AV node. That means Nick would have to have a pacemaker installed. The man is going to outlive me, I know it ;) While learning all of this we were been waiting for the MD's to decide if they were going to fly us down to San Diego to have the procedure done (there's no military MD around here who performs that procedure) or refer us out to a civilian doctor near home. They have finally gotten all their ducks in a row and Nick will be seeing a new cardiologist tomorrow, and hopefully be scheduling the procedure.
To make things more complicated, we have to have a procedure done for Brother Bear (Henry). We originally went to see the "team" last month, but were not able to meet with the plastic surgeon. The surgeon at Madigan is moving and would not be there when Henry would be having surgery so they suggested we wait for a referral for the surgeon that would be taking care of us so we didn't have to meet with two different guys. One would think it was a wise decision and helpful for us, but it has almost been a pain in the bum. We finally got a call that the referral went through. I called the "appointment" line for Tricare to set up the consult, no luck, the clinic is supposed to contact us to make the appointment. So, like any good Mama, I called the clinic to get the ball rolling. That was at the beginning of August and no one has called me back. I called the appointment line again and they said they would put in a message for the clinic to call me back in one business day....no good, still haven't heard a word from them. I called them today and left a message. If I don't hear from them I will call the patient representative and let them handle it all. I guess in a way this is a blessing because we are able to handle Nick's health concerns first and not have to try and schedule Henry and Nick around each other. Blessing or not, the waiting is killing me. I'd just like to have every thing scheduled and taken care of. Answers seem to help.
Kailey started preschool this week which is exciting. The school has been all over the place and not very organized. Without going into details and complaining about everything, I'll just say it's frustrating and I'm hoping it is not foreshadowing of how the year will go there.
We also got a call two weeks ago to confirm we will be moving in May of 2015. We had a feeling it was coming, and now we know for sure. We are both excited, and nervous. Though we have loved being here, it has been the most challenging period of our lives together so far. There are many dynamics that have played a part in that and we've sorted through most of them together. We have grown and learned so much here, about family, ourselves and communication.
I'm being challenged to learn and grow more these last few weeks and for that I am thankful. Everything has a silver lining. Everyday is a gift. All I can do is be conscious of the goings on in my life and be thankful I have an amazing little family. We will rock these next few months like there's no tomorrow!
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